OK, so I have had a break from boring you all with Daisy’s repetitive antics for over a year now, time flies when you are living the dream, cough!
To update you, Daisy has reached the dizzy heights of 18 without me smothering her whilst she sleeps, she’s still non verbal, still 10 months mentally and still an absolute pain in the arse. Harvey has now qualified in Law and is still bleeding us dry and hubby is still abroad after spending a year at home hogging the tv remote and managing to find every possible football game on the planet to watch. His days were numbered, he had to leave.
So, its round two of my dull blogging before I hopefully publish a book later this year…..thats my dream. I do worry no one will ever want to read my shite but wouldn’t it be nice if I could pop ‘author’ on my insta bio, that would look pretty impressive, no?Husband and son laugh so I must prove them wrong, I just have to be arsed and stop talking about it and just do it!
To re-iterate from the first time I started this blog…………
If I had a pound every time I’ve uttered the words ‘Daisy cannot talk’ I’d be very rich indeed but the ‘not talking’ is just a small element of her problems.
Daisy is classed as PMLD which to most of the population means very little but to those thrust into the world of ‘special needs’ means Profound Multiple Learning Difficulties’ She has never been given a ‘real’ diagnosis though and throughout the years we have had umpteen ‘syndromes’ thrown into the pot. Retts, Angleman, Prada Willi, the list goes on and on, Google was needed for all of them, none of them came up trumps. Daisy is unable to communicate or understand language and through her frustrations can get a tad agitated! She lives in a world that doesn’t tolerate or understand. Daisy has no clue when people stare, laugh, judge, but I (we) do and I am so sad for the life I have given her.
Daisy has epilepsy suffering seizures every 2 – 3 weeks.
Daisy will never have a boyfriend, husband, lover (why did I choose that order?) She will never steal my clothes, handbags or make up, never ask for an iPad or iPhone for her birthday, never play her music too loud (Harvey are you reading this?), never get drunk (Harvey are you reading this?)………many parents would think these are blessings but not me, I’d love her to do all the above and more.
My posts will be about Daisy’s day to day life and the struggles we face as a family (well, actually the struggles I face, everyone else has buggered off) just trying to lead at best a ‘normal’ life. I may not always be politically correct so please don’t take offence, they are only words! I hope it will show readers that life can be shitty at times but if you can laugh at adversity it can, with the help of wine, gin and chocolate, be tolerable…..just!
I’m a wife and mum of two. My hubby Nick works in West Africa and pops home every nine weeks to see me. My son Harvey has just qualified in Law from University of Birmingham, proud mum moment. Me, I work (use the term loosely) in hospital pharmacy and try to make clinical trials run nice and smoothly.
I love all trash reality tv, TOWIE, Love Island, Ex on the Beach, Housewives of just about everywhere……..you get the picture, I also love fashion, shopping, spending my husbands money, wine, gin and chocolate.
Daisy has consumed my life for the last 18 years, I’ve cried (a lot), laughed, worried and been immensely frustrated by all that comes with having a ‘special needs child’ but I don’t let her disability stop me being me and never will.